Habilidades sociais educativas de uma professora na contação de histórias para pré-escolares / Educational social skills of a teacher in storytelling for preschoolers / Habilidades sociales educativas de una docenteen la narración de cuentos para preescolares

A literatura infantil constitui recurso importante para promover o desenvolvimento socioemocional na Educação Infantil, especialmente quando a narração é mediada por habilidades sociais educativas (HSE) do professor. Supõe-se que conhecimento da história e orientações específicas sejam condições para bom desempenho dessas habilidades. Este estudo avaliou as HSE de uma professora da Educação Infantil para contar histórias nas seguintes condições: com/sem fichas de orientação; com/sem acesso prévio ao livro e/ou à ficha; mantendo/mudando o livro de uma aula para outra; com/sem orientação prévia sobre HSE. O desempenho da professora foi filmado e analisado por juízes, quanto à ocorrência e frequência de HSE esperadas nessa atividade. Os resultados indicaram maior frequência e variabilidade de HSE quando se adotou a ficha, em especial, no primeiro acesso a esse recurso, com algumas HSE ocorrendo somente nesta condição. Propõe-se a adoção de apoios e programas de orientação a professores, levantando-se questões de pesquisa nessa temática (AU).

Children's literature is an important resource to improve socio-emotional development in Early Childhood Education, especially when the storytelling is mediated by the teacher's educationalsocial skills (ESS). Knowledge of the history and specific orientation are assumed conditions for the performance of these skills. This study evaluated an early childhood teacher's ESSfor storytelling under the following conditions: with/without prompt sheets; with/without prior access to the book and/or the archive; keep/change the bookfrom one class to another; with/without prior orientation in ESS. The teacher's performance was videotaped and analyzed by judges, in terms of the occurrence and frequency of ESStypical of this activity. The results indicated higher frequency and variability of ESSwhen the form was adopted, with some ESSoccurring only in this condition. The adoption of support and guidance programs for teachers are proposed, raising research questions on this topic (AU).

La literatura infantil es un recurso importante para promover el desarrollo socioemocional en Educación Infantil, especialmente cuando la narración está mediada por las habilidades sociales educativas (HSE) del maestro. Se asume que el conocimiento de la historia y la orientación específica son condiciones para el desempeño de estas habilidades. Este estudio evaluó los HSE de una maestra de Primera Infancia para contar historias en las siguientes condiciones: con/sin hojas de orientación; con/sin acceso previo al libro y/o al archivo; mantener/cambiar el libro de una clase a otra; con/sin orientación previa en HSE. La actuación del docente fue filmada y analizada por jueces, en cuanto a la ocurrencia y frecuencia de HSE propios de esta actividad. Los resultados indicaron mayor frecuencia y variabilidad de HSE cuando se adoptó el formulario. Se propone la adopción de programas de apoyo y orientación a los docentes, planteando interrogantes de investigación sobre este tema

La enfermera Genene Jones: El rol de ángel de la muerte en la obra Misery deStephen King / Enfermeira Genene Jones: O papel de anjo da morte na Miséry de Stephen King / Nurse Genene Jones: The Role of the Angel of Death in Stephen King's Misery

With the sublime emotional description that Stephen King achieves of the main characters inMisery, the writer manages to delve into the world of affections and feelings, exploring the art of care andits negative aspects. He manages to delve into the figure of the nurse Genene Jones, representative of therole of the angel of death, making visible theories that frame these typologies and their acts. Objective:to describe the behaviours, experiences, beliefs and values set out by Stephen King in the story "Misery"(1987). Methodology: Phenomenological-historical study with an exploratory approach in narrative andsecondary sources of the events that took place in the period between 1950-1990. Results: The piece is amasterful analysis of Genene Jones' nursing practice. It also reflects the transformation from the role ofan angel of death, carried out by a health professional, to become a serial killer. Conclusion: The studyof the horror literature allows the study of the nursing role to deepen and increase the knowledge of thenursing role, both for health professionals and nursing students and the general population. (AU)

Con la sublime descripción emocional que Stephen King logra de los protagonistas de Misery, elescritor consigue profundizar en el mundo de las afecciones y los sentimientos, explorando el arte delcuidado y sus aspectos negativos. Consigue ahondar en la figura de la enfermera Genene Jones,representante del rol de ángel de la muerte, visibilizando teorías que encuadran estas tipologías y susactos. Objetivo: describir las conductas, vivencias, creencias y valores expuestos por Stephen King en lanarración “Misery” (1987). Metodología: Estudio fenomenológico-histórico con abordaje exploratorio enfuentes narrativas y secundarias de los acontecimientos sucedidos en el periodo de tiempo comprendidoentre 1950-1990. Resultados: La obra es un análisis magistral del proceder enfermero de Genene Jones.Asimismo, refleja la transformación desde el rol de ángel de la muerte, llevado a cabo por un profesionalde la salud, hasta llegar a convertirse en un asesino en serie. Conclusión: El estudio de la literatura deterror permite profundizar e incrementar los conocimientos del rol enfermero, tanto a los profesionales dela salud como a los estudiantes de enfermería y la población en general. (AU)

Com a sublime descrição emocional que Stephen King consegue nos protagonistas da Miséria, oescritor mergulha no mundo dos afectos e sentimentos, explorando a arte do cuidado e os seus aspectosnegativos. A figura da enfermeira Genene Jones, um representante exemplar do papel do anjo da morte, éaprofundada, tornando visíveis as teorias que enquadram estas tipologias e os seus actos. Objectivo:descrever os comportamentos, experiências, crenças e valores expostos por Stephen King na história"Miséria" (1987). Metodologia: Estudo fenomenológico-histórico com uma abordagem exploratória emnarrativa, com recurso a fontes secundárias dos acontecimentos que tiveram lugar no período de 1950-1990. Resultados: O trabalho é uma análise do procedimento de enfermagem de Genene Jones e decomo o papel de anjo da morte, desempenhado por um profissional de saúde pode vir a personificar afigura de um assassino em série. Conclusão: O estudo da literatura de horror permite aprofundar, veroutras facetas, e aumentar o conhecimento do papel da enfermagem, tanto pelos profissionais de saúde eestudantes de enfermagem como pela população em geral. (AU)

Educação étnico-racial de crianças pequenas no "percurso território negro" de museus em Belo Horizonte / Education of young children in the "black territory route" of Belo Horizonte´s Museums

Este artigo problematiza o fenômeno lazer na contemporaneidade e a urgência de adotarmos outros paradigmas para a análise de suas manifestações. Ele apresenta uma pesquisa realizada com crianças da Educação Infantil em museus no sentido de educar para outras sensibilidades. O estudo objetivou analisar as narrativas de crianças de 5 anos sobre a situação do povo negro no Brasil em nossa sociedade, possibilitada por visitas em dois museus de Belo Horizonte. Desse modo, a articulação dos conceitos de lazer, infância, currículo, educação e linguagem museal, permitiu análises que caminharam na direção de uma educação étnico-racial dessas crianças. A pesquisa qualitativa adotou o estudo de caso e as estratégias de análise documental, entrevistas, observação participante. Percebeu-se uma leitura positivada sobre o povo negro pelas crianças e a constituição de outros imaginários oportunizada por práticas lúdicas fora do contexto escolar.

This paper discusses the phenomenon of leisure in contemporary times and the urgency of adopting other paradigms to analyze its manifestations. It presents a research carried out with children from kindergarten in museums in order to educate for other sensibilities. The study aimed to analyze the narratives made by 5-year-old children about the situation of the black people in our society, powered by visits to two museums in the city of Belo Horizonte. Thereby, the articulation of the concepts of childhood, curriculum, education and museum language allowed analyses that moved towards an ethno-racial education for these children. The qualitative research adopted the case study and document analysis strategies, interviews, participant observation. Thus, we see a positive reading about black people by the children and the constitution of other imaginaries made possible by playful practices outside the school context.

Narratives of Charles Darwin Down Under.

Despite the fact that Charles Darwin spent several months in Australia in the final year of his Beagle voyage that circumnavigated the globe, most studies that deal with Darwin's life or his discovery of evolution spend little time discussing his Australian period, if it is mentioned at all. His time there is largely deemed to have produced little of significance in comparison to his visits to other places such as the Galápagos Islands, which has long been mythologized as providing the key sources of observable data that ultimately led Darwin to develop his evolutionary speculations. In recent years, however, Darwin's period in Australia has received more attention, most notably a series of studies detailing the observations and connections Darwin made while in New South Wales, Tasmania, and King George Sound. While much of this literature has provided an important corrective to previous Darwin scholarship that had largely ignored Darwin's period in Australia, it has also worked to perpetuate a romantic and heroic view of scientific discovery by suggesting that Darwin's key "evolutionary revelation" was made not in the Galápagos Islands but in the Blue Mountains, a claim that has been recently made in print and online. This paper therefore examines the historical literature on Darwin Down Under, focussing in particular on this recent romantic turn that seeks to situate Australia as the key site of inspiration for Darwin's theory of evolution.

Brígida Flores: un legado trascendente en la terapia ocupacional chilena. Una biografía / Brígida Flores: a transcendent legacy in chilean occupational therapy. A biography

OBJETIVOS: construir el perfil biográfico de una de las mujeres fundadoras y principales representantes de la terapia ocupacional en Chile: Brígida Flores. MÉTODO: desde un paradigma interpretativo, por medio del enfoque biográfico e incorporando elementos de la teoría fundamentada, se realiza el rescate de la historia oral por medio de entrevistas semiestructuradas en profundidad a personas cercanas que tuvieron relación con Brígida Flores. Además, se analizan textos académicos publicados y no publicados, material audiovisual, entre otros documentos. RESULTADOS: se realiza una codificación de la información por medio de intervalos cronológicos, generando la construcción de un perfil biográfico en base a la saturación de la información. Junto con ello, se incorporan elementos contextuales de la época en que Brígida Flores ejerció como terapeuta ocupacional y académica. Así, se identifican diferentes momentos de su historia. CONCLUSIONES: se destaca a Brígida Flores como una de las mujeres más relevantes e influyentes en los inicios de la profesión. Su historia ha trascendido diferentes generaciones y lugares del país. Sus enseñanzas son parte de la identidad profesional de muchas/os terapeutas ocupacionales de Chile

OBJECTIVE: To write the biographical profile of one of the main female founders and most representative figures in Occupational Therapy in Chile: Brígida Flores. METHOD: From an interpretive paradigm, through the biographical approach and incorporating elements of grounded theory, the rescue of oral history is carried out through in-depth semi-structured interviews with close people who had a relationship with Brígida Flores. Published and unpublished academic texts, audiovisual material, among other documents are also analysed. RESULTS: A codification of the information is carried out by means of chronological intervals, generating the construction of a biographical profile based on the saturation of the information. Along with it, contextual elements from the time when Brígida Flores was an occupational therapist and academic are incorporated. Thus, different moments in its history are identified. CONCLUSIONS: Brígida Flores stands out as one of the most relevant and influential women in the early stages of occupational therapy in Chile. Her history has transcended different generations and places in the country. Her teachings are part of the professional identity of many occupational therapists in Chile

Teatro do Oprimido | I Mostra de Vivências nos Territórios de Saúde

ABERTURA DO EVENTO COM MOMENTO CULTURAL -- Desempenhada com muito bom humor pelos Agentes Comunitários de Saúde de Palmas a peça de teatro marcou o início da I Mostra de Vivências nos Territórios de Saúde do Tocantins.

Earliest hunting scene in prehistoric art.

Humans seem to have an adaptive predisposition for inventing, telling and consuming stories1. Prehistoric cave art provides the most direct insight that we have into the earliest storytelling2-5, in the form of narrative compositions or 'scenes'2,5 that feature clear figurative depictions of sets of figures in spatial proximity to each other, and from which one can infer actions taking place among the figures5. The Upper Palaeolithic cave art of Europe hosts the oldest previously known images of humans and animals interacting in recognizable scenes2,5, and of therianthropes6,7-abstract beings that combine qualities of both people and animals, and which arguably communicated narrative fiction of some kind (folklore, religious myths, spiritual beliefs and so on). In this record of creative expression (spanning from about 40 thousand years ago (ka) until the beginning of the Holocene epoch at around 10 ka), scenes in cave art are generally rare and chronologically late (dating to about 21-14 ka)7, and clear representations of therianthropes are uncommon6-the oldest such image is a carved figurine from Germany of a human with a feline head (dated to about 40-39 ka)8. Here we describe an elaborate rock art panel from the limestone cave of Leang Bulu' Sipong 4 (Sulawesi, Indonesia) that portrays several figures that appear to represent therianthropes hunting wild pigs and dwarf bovids; this painting has been dated to at least 43.9 ka on the basis of uranium-series analysis of overlying speleothems. This hunting scene is-to our knowledge-currently the oldest pictorial record of storytelling and the earliest figurative artwork in the world.

Imprinting Care and the Loss of Patient Narrative: Creation and Standardization of Medical Records.

BACKGROUND: Medical records manufacture a representational model of a person. Yet, little has been done to analyze the historical construction of patient charts, the deliberations in the process of their creation, and how early patient charts displaced patients' narratives. OBJECTIVES: To retrospectively study the structure and production of old patient charts. METHODS: Anchored by the Archives of Ontario's medical records from three 19th century psychiatric asylums-Hamilton, London, and Kingston, Canada-the paper tools are reproduced on the basis of their original manufacturing processes using cast-iron presses and relevant typesetting. This includes mirroring the process of assembly, recontextualizing the form's limitations as a function of its construction, making historical the diagnostic considerations relevant at the time, and noting the continuum of practical and operational choices that have stretched into current records. RESULTS: An explication of the advance of physicians' objective records and the decline of the subjective patient view is given from index-card inception through design, accreditation, standardization, forms, and quantity, to analysis replacing narration. CONCLUSION: Through this artistic work, medical paradigms become realized through paper borders. With ink, lead, and historical manufacturing, a world view is re-created. Such a marriage of medicine and art challenges the static interpretations of paper tools as only ends to the objectification of patients; instead, a tradition of reconfiguring the medical body as a thing dissolving into objectification becomes apparent. This trend continues now through the lack of narrative balancing a person's health care experience and his/her medical record.

Modern Spain, a myth: regeneration through reeducation in Santiago Ramón y Cajal’s Vacation Stories (1905)

This essay explores the regenerationist thought of Santiago Ramón y Cajal in his Vacation Stories (1905). Two stories of the collection, "The Accursed House" and "The Natural Man and The Artificial Man", can be read as an allegory of Spain at the end of the century nineteenth. In "The Accursed House", the indiano scientist Julián tries to convince Inés to adopt the same scientific perspective of the world that he has. Similarly, he sets out to regenerate his degenerated manor, to which he has given the suggestive nickname Villa Inés. The story serves as a model for the regeneration of Inés, who represents traditional Spaniards, and Villa Inés, which represents Spain. For its part, the story of Esperaindeo Carcabuey in "The Natural Man" offers a warning, as it tells of his failed life, which he links directly with his inferior education (impregnated as this was with metaphysics). Only by adopting Jaime's progressivism can Esperaindeo change the direction of his life. In both stories, Cajal links the reeducation of the characters with his more comprehensive interest in national regeneration. In view of the allegorical impulse of these stories, Vacation Stories constitutes a foundational myth on which Cajal constructs his vision of a modern Spain

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[Visna of Egill Skallagrimsson].

Considering the changes in moral principles, human behavior and behavioral values through the ages, in Egill Skallagrimsson's Saga, Egill presents us with altered mental status. This is in terms of what at present is considered symptoms of an anti-social personality, and bipolar affective disorder. Egill Skallagrimsson is considered one of the most famous Vikings in the Icelandic Sagas. Archaeological findings mentioned in Egill's Saga indicate disfigurement of his skull, which has led many authors to suggest that Egill suffered from skeletal dysplasia. The primary assumption in the literature is that Egill Skallagrimsson was affected by Paget's disease of bone. This consideration is additionally based on the scholar's interpretation of the Saga text. The unique storytelling style in the Saga of Egill Skallagrimsson is evident; however, the question of the story's truthfulness remains open. In this article, we investigate Egill Skallagrimsson's assumed Paget's disease of bone, based on the physical and mental symptoms disclosed in the Saga of Egill Skallagrimsson. Associated with the assumption, the author's hermeneutics of Egill's Saga in the context of modern-day knowledge of Paget's disease of bone, brings forward the probability estimate to the range of permille. In Scandinavian folklore and mythology, a tale by Saxo Grammaticus of a notorious shield-maiden named Visna, reminds of Egill, as noted by Snorri Sturluson. Hence, in reference to Egill Skallagrimsson's mental status and physical appearance as listed in Egill's Saga, the authors recommend the name for his condition to be "Visna of Egill Skallagrimsson".

Representing AIDS in Comics.

Matthew P. McAllister wrote: "Comic books can and have contributed positively to the discourse about AIDS: images that encourage true education, understanding and compassion can help cope with a biomedical condition which has more than a biomedical relevance" [1]. With this in mind, I combined a 23-narrator oral history and my personal memoir about an inpatient Chicago AIDS hospital unit in my book, Taking Turns: Stories from HIV/AIDS Care Unit 371. In doing so, I built upon the existing rich history of HIV/AIDS in comics, which this article will briefly describe. Although not a comprehensive review of the intersection of AIDS and comics, the book is a tour through influences that proved useful to me. In addition, in making my book, I faced a distinct ethical issue with regard to representing patient experiences with HIV/AIDS, and I describe here how I addressed it.

El Cáncer: mi Maestro (III): Seis lecciones aprendidas en mi viaje a la índia / Câncer: meu Mestre (III): Seis lições aprendidas na minha viagem para a Índia / Cancer: my Teacher (III): Six lessons learned on my trip to India

En este relato el autor, enfermero de profesión, describe de forma precisa e intensa las vivencias que le provocaron un enorme y significativo impacto en su vida: el diagnóstico de un cáncer de pulmón. Asimismo relata las experiencias tan emotivas que se desarrollaron en el transcurso de su proceso de tratamiento cargado de incertidumbres y, sobre todo, los apoyos emocionales, las amistades y la familia que tanto le ayudaron a superar esta nueva fase de la vida en la que, como él señala, tanto está aprendiendo gracias a su maestro: el cáncer (AU)

In this narrative the author, nurse by profession, describes in a precise and intense way the experiences that caused a huge and significant impact on your life: the diagnosis of a lung cancer. Also recounts so emotional experiences that were developed in the course of his process fraught with uncertainties treatment and, above all, emotional support, friends and family who both helped him to overcome this new phase of life in which, as he points out, both are learning thanks to his teacher: cancer (AU)

Nesta história, o autor, enfermeiro de profissão, descreve de forma precisa e intensas experiências que causaram um impacto enorme e significativo na sua vida: o diagnóstico de câncer de pulmão. Também relata experiências até emocionais que foram desenvolvidas no decurso do seu processo repleto de tratamento incertezas e, sobretudo, apoio emocional, amigos e familiares que tanto ajudaram para superar esta nova fase da vida em que, como ele aponta, ambos estão aprendendo graças ao seu professor: cáncer (AU)

Frances Burney's Mastectomy Narrative and Discourses of Breast Cancer in the Long Eighteenth Century.

This paper examines Frances Burney's 1812 mastectomy letter alongside contemporaneous medical treatises on the subject of breast cancer. Burney's letter offers a critique of a medical community that misconstrues her experience and can be viewed as pathography, or disability memoir. Examining the letter and the treatises in this way illuminates the brutality of some medical practices and the frequent incongruity between the patients' and the physicians' understandings of pain. However, the letter and the treatises also share much in common; both at times emphasize the patient's words and experiences, and both reveal the impressive and contradictory range of ideas surrounding breast cancer in the long eighteenth century. The paper ends by suggesting that the complex rapport between the letter and the treatises holds particular interest for the field of disability studies in its confrontations with socio-medical tendencies to normalize the body and downplay the harsh realities of breast cancer.

The Structure and Content of Flow Experience Narratives in Sport: The Tale of an Elite Sportsman / Estructura y contenido de las narrativas de experiencia de flow en el deporte: El relato de un deportista de élite

ABSTRACT Through an example of structure analysis of the narrative of flow by one elite sportsman, this article attempts to shed some light on this debate in the context of understanding flow experiences as a narrative. A sportsman was invited to (a) think about flow moments; (b) describe these experiences in as much detail as possible; and (c) contextualize the experiences by delving into his life story. The recorded interviews of the participant were transcribed and subject to categorical-form and categorical-content analyses. The results show that: (a) the form and content of this participant's flow experiences were mediated by the narrative structure of his story and (b) the very story was what provided meaning to the participant's experiences of flow.

RESUMEN A través de un ejemplo de análisis de la estructura de las narrativas de flow contadas por un deportista de élite, el presente artículo intenta arrojar algo de luz sobre el debate de entender las experiencias de flow como narrativa. Un deportista fue invitado para que (a) pensara sobre momentos de flow, (b) describiera esas experiencias con tanto detalle como fuera posible, y (c) contextualizara las experiencias ahondando en su historia de vida. Las entrevistas grabadas del participante fueron transcritas y sometidas tanto a un análisis de contenido categorial como a un análisis de forma categorial. Los resultados muestran que: (a) la forma y el contenido de las experiencias de flow del participante estuvieron mediadas por la estructura narrativa de su historia y (b) la historia narrada fue la que proporcionó significado a las experiencias de flow del participante.

Symptom and Surface: Disruptive Deafness and Medieval Medical Authority.

This essay examines constructions of deafness in medieval culture, exploring how deaf experience disrupts authoritative discourses in three textual genres: medical treatise, literary fiction, and autobiographical writing. Medical manuals often present deafness as a physical defect, yet they also suggest how social conditions for deaf people can be transformed in lieu of treatment protocols. Fictional narratives tend to associate deafness with sin or social stigma, but they can also imagine deaf experience with a remarkable degree of sympathy and nuance. Autobiographical writing by deaf authors most vividly challenges diagnostic models of disability, exploring generative forms of perception that deafness can foster. In tracing the disruptive force that deaf experience exerts on perceived notions of textual authority, this essay reveals how medieval culture critiqued the diagnostic power of medical practitioners. Deafness does not simply function as a symptom of an individual problem or a metaphor for a spiritual or social condition; rather, deafness is a transformative capacity affording new modes of knowing self and other.

Episódios marcantes das aulas de educação física: valorizando as experiências dos alunos por meio de narrativas / Important episodes of physical education classes: valuing students’ experiences through narratives / Episodios destacados de las clases de educación física: valorizando las experiencias de los alumnos a través de narrativas

A escola, lugar no qual os estudantes passam um tempo considerável e intenso de relações, se constitui como um cenário de possibilidades de construção de experiências. Este estudo buscou identificar e analisar os episódios, em formato de casos de ensino, escritos por alunos do ensino médio sobre suas experiências nas aulas de Educação Física. As experiências narradas pelos alunos trouxeram indagações aos professores de Educação Física no sentido de mobilizar o saber orgânico para um saber verbalizado, constituindo com isso uma pedagogia que reconheça efetivamente a experiência discente como um saber.

School – where students spend considerable time and live intense relationships – is a scenario of possibilities for experience-building. This study aimed to identify and analyze episodes written by high school students about their experiences in Physical Education classes, in the format of teaching cases. The experiences narrated by the students raised questions to Physical Education teachers by mobilizing organic knowledge towards verbalized knowledge, thus establishing a pedagogy that effectively recognizes students’ experience as knowledge.

La escuela, el lugar donde los estudiantes pasan un tiempo considerable e intenso de relaciones, se constituye como un escenario de posibilidades de construcción de experiencias. Este estudio tuvo como objetivo identificar y analizar los episodios en la forma de casos de enseñanza, escritos por estudiantes de secundaria acerca de sus experiencias en las clases de Educación Física. Las experiencias narradas por los alumnos trajeron preguntas a los profesores de Educación Física en el sentido de movilizar el saber orgánico hacia un conocimiento verbalizado, formando con ello una pedagogía que reconozca efectivamente la experiencia de los estudiantes como un saber.

Narratives on health: reflections on care for people with disabilities and genetic disease within the Brazilian National Health System (SUS) / Narrativas em saúde: refletindo sobre o cuidado à pessoa com deficiência e doença genética no Sistema Único de Saúde (SUS) / Narrativas en salud: reflexión sobre el cuidado a la persona con discapacidad y enfermedad genética en el Sistema Brasileño de Salud (SUS)

Dentre os fatores que interferem para um cuidado efetivo à saúde de pessoas com deficiência e doenças genéticas no SUS, incluem-se: a presença de estigmas, de relações marcadas pelo poder biomédico e pela violência institucional. O objetivo deste artigo é discutir as questões que atravessam esse cuidado, utilizando, como fio condutor, narrativas de experiências vividas pela autora no cuidado a crianças e famílias. Escrito no formato de ensaio, este texto discute as questões envolvendo o cuidado à saúde e a dádiva no contexto de práticas orientadas pela biomedicina e pelo biopoder. As narrativas revelam a capacidade de transformação de afetos e potencialização de encontros, marcados por circuitos de dádiva e pautados pela construção de relações intersubjetivas entre profissionais e usuários dos serviços que promovem novos espaços e formas de cuidado à saúde...

Entre los factores que interfieren para un cuidado efectivo de la salud de personas con discapacidad y enfermedades genéticas en el SUS, se incluyen los siguientes: la presencia de estigmas, de relaciones marcadas por el poder biomédico y por la violencia institucional. El objetivo de este artículo es discutir las cuestiones que atraviesan ese cuidado, utilizando como hilo conductor narrativas de experiencias vividas por la autora en el cuidado a niños y familias. Escrito en el formato de ensayo, este texto discute las cuestiones que envuelven el cuidado de la salud y la dádiva en el contexto de prácticas orientadas por la biomedicina y por el biopoder. Las narrativas revelan la capacidad de transformación de afectos y potencialización de encuentros, marcados por circuitos de dádiva y regidos por la construcción de relaciones intersubjetivas entre profesionales y usuarios de los servicios que promueven nuevos espacios y formas de cuidado de la salud...

The factors that influence effective healthcare for people with disabilities and genetic diseases within SUS include the presence of stigma, relationships marked by biomedical power and institutional violence. This paper aims to discuss the issues that run through this care, guided by narratives on this author's experiences of caring for children and families. This text was written in essay format and discusses the issues surrounding healthcare and benefits, within the context of practices driven by biomedicine and biopower. The narratives reveal the transforming capacity of affection and additional potential of meetings, marked by circuits of benefits and guided by construction of interpersonal relationships between professionals and service users that promote new spaces and forms of healthcare...